Amyloidosis Working Group
About The Amyloidosis Working Group
The Amyloidosis Working Group (AWG) of IC-OS seeks to improve patient outcomes and quality of care for individuals with amyloidosis through clinical research initiatives, innovative educational programs, and effective dissemination of best practices.
Recent Projects
Achievements since inception 7/2021:
- 4-part Webinar Series 2021, online curriculum. (Nearly 5000 active learners, in partnership with The France Foundation (TFF)
- Amyloidosis Update Online Module (completed this quarter, 1/2023), 2022
- Successful Grant Application with Primary Care focused educational series, 2023. (Partners with the Amyloidosis Foundation and The France Foundation)
- Multiple presentations on the weekly webinar series, 10 since 7/2021
- Combined webinars with the International Society of Amyloidosis (2)
- 5 minute Video for Early Detection and Improved Awareness of Amyloidosis (in production)
- Creation of Rachel Dara Lavine Awareness Fund
Current efforts:
- Regional Learning Collaborative Grant
- Centers of Excellence process
- Enhance collaborations with other groups interested in Amyloidosis
